Thank you for email !!!
They keep encourgaging me and gives me strength to continue!
While I at some points gets better and better, really fast and with great succes - mostly when it comes to the spinaldamage and things directly related to that.
(And that alone is such a very hugh part of my life and hole healthsituation - it becomes more and more clear that the bladder and the inner ulcers need higher presssure in order to get better.)
My health s a mess of seriously many diagnosis, each with a seriously lot of symptomes, so there are many big and small problems for the HBO to solve !
When i bought my chamber I was not aware you could get chamber for homeuse that could deliver several pressures - in a safe way !
So I had a chamber with one, low pressure, cause I was told to expect very longterm treatment - and the low pressure was the best to neurological symptomes - and I must say;
my body looooooves it - when it comes to cramps from spine, pain, general welbeeing, energy, strength - endurance!
I have at least 10 hours up from bed time more than before hometreatment.
Every day ! It IS amazing !!
But also a confusing time - cause at some points I really really is getting better, at some points still standing still!
The things I can do better and better;
are getting stronger, no doubth! While most of my cartilage in the body is gone or ruined and I need to use heavy fixating braces and splints, they DO get stronger
...and it means I can paint ..and I love it...really !
"Weak and weird", is stronger, dosnt bleed as much as before, also the symptomes NOT involving the spinalcramps.
When I had the spinalcramps, the heavy contrations of my muscles ruined my joints, joints capsules, cartilage, muscles,
tendons between bones, and the tiny attachments betwen muscles and bones.
It is a hugh improvement that the spinal cramps are so lowered as they are - amazing !!!
I can drive out in my garden - and do some work - I have already been out this year more than the last 6 years together !
So dayli energy and strength - no doubt -much much better.
Pain is still lowering - I still get in the chamber twice a day...and still enjoyes it!
- early in the morning before the one hour pfysical training and painmanagement. One hour in the chamber - fantastic effect !
- duing the day I can do different kinds of things and then rest - and recuperate !
Meaning I can be active, rest and feel new energy ! AMAZING to say hello again to this "good old friend", a normal mecanisme in your body.
I havent had this function since 1991 when the spine-hell started!
- still feels better, even the left - still nothing left of the "dolphine-sound" that was so easy to hear before HBO - a rare symptom from EDS.
The things that still are hugh serious problems;
destruction of the mucous membrans in bladder and stommack, which gives extremely strong reactions to any food and drink.
the inner protective layers are gone - so it all becomes chemical reactions - and they are not nice !
Many people at the same place - still a challenge that makes it not advisable to be in places with many people yet - a challenge cause when you get to feel better and get more energy, to have to stay away from things that you now could have taken part of!
After those 4 years, not able to do anything - and then the door opens to a little activity, it can hard to control what you actually want to do and not overdo anything to early !
I do so clearly remember the many preumonias!
And the relief of not having any now...and try to stay very focused !
It has been possible for me to take up another
old passion, taking pictures - I do so enjoy this again !
Look at the gallery here, just click and take a look !