To kick start the treatment and try to gain some recovery and relief, I have been offered to reopen DMSO treatments !!!
Has a lot different treatment of the bladder,especially in the first years after surgery - none effect!
Had then a break for many years (given up) until a little over 4 years ago, it got tremendously worse.
The last more than 3 years I have been treated with DMSO at the urological department on OUH.
I've always had incredibly difficult to tolerate it, is hugely sick for 5-6 days afterwards ..... really really sick!
And it takes a serious view of the resources that have not really been there, so to have continued it as the absolute last chance for more than 3 years, is a good expression of the situations desperation and despair.
The only time it had an impact was in the months after hyperbaric therapy - so I very much hope the agreed treatments will help!